Oh boy, now this one might be long so maybe I should do it in parts. I've had health issues since I was a child. I started physiotherapy for Patella Femoral Syndrome and Osgood-Schlatters between 9 and 10 years old. Both of these knee conditions involve pain from overuse and/or puberty. Then later on when I was 11 years old I had an accident where I broke my left ankle in a very stupid and embarrassing way...Running in high heels at 11 years old... So after that accident I had a cast put on for a 3 week period only to find out that when they were sawing it off, it was put on wrong. Instead of having my foot flat, it was almost as if I was pointing it like you would in ballet. So another 2-3 weeks in a different cast, and I started to feel this weird pain in my toes on the same foot. I thought nothing of it. Then after the cast was removed it started to hurt even more and my toes looked like mini sausages. The skin was shiny, sensitive to the touch and just a wicked amount of pain. It was just after my 12th birthday that I had been diagnosed with Reflex Sympathetic Dystrophy, which is now known as Complex Regional Pain Syndrome (I usually just call it RSD or CRPS to save time though...).
There are two types:
- Type 1. Also known as reflex sympathetic dystrophy syndrome, this type occurs after an illness or injury that didn't directly damage the nerves in your affected limb. About 90 percent of people with complex regional pain syndrome have type 1.
- Type 2. Once referred to as causalgia, this type follows a distinct nerve injury.
It was never specified what was the cause of it but, puberty, PTSD, and the improper cast placement could be contributing factors according to doctors and specialists. I have tried multiple different treatments but again that's another blog post...
Through out the years I have been diagnosed with other chronic illnesses that basically go hand-in-hand with RSD/CRPS. Irritable Bowel Syndrome, Chronic Fatigue Syndrome, Disintegrating Disc Disease, Depression, Anxiety and Fibromyalgia.
The Fibromyalgia diagnosis was actually a shock because it was 5 years late. This amazing doctor that I had met 5 hours from where I live was the most honest and compassionate doctor there was. He had told me that I had fibromyalgia since about the same time I had been diagnosed with RSD/CRPS. He told me that my doctors back home didn't want to tell me because they didn't want to be the ones to deliver the bad news and give me a "life sentence". So there I was years later, and I had never been told that I had one of the most painful diseases. I could have been doing alternative treatments... It was extremely frustrating and I had felt cheated. THAT is when I begun the most successful treatment of all. Marijuana. And that will be in many blog posts to come so, look out.
I have a lot of things going on medically and I can definitely say I've learned a lot of valuable things. There is so much more for me to write on the subject. Between treatments, medications, hurdles I overcame, bullying, ignorant doctors, and multiple diagnoses, there will be lots to write about.